Tuesday, April 17, 2012


 Simeon's first surgery will be in 2 1/2 weeks, 
Friday, May 4th
The more I think about how close it is, the sicker I get!!
I just feel so sick to my stomach thinking about it.
I know it is for the best, I know he needs this done.
It's just nerves
It's the unknown maybe.
We love him the way he is, it's hard to imagine 
how he will look afterward.  
Gardenia reminded me about praying a novena for him,
so I'm looking right now for one.
I'm leaning on a Sacred Heart one.

I just realized this morning that all that milk I froze back in January, 
has gluten in it.
I am having a hard time parting with it.
I guess I need to start freezing again, 
my new gluten free milk.
This time I will freeze it in the deep freeze and save it for when he's a year,
and quit pumping then!

We've also been taking him to a Chiropractor to help with his fussies...
I think he's the same, but I know it's good for him.


  1. I'm already praying for that beautiful baby. I just know it's going to go exactly the way it's supposed to and that Simeon will amaze them with his progress.

    Oh, that's a lot of hard earned milk to have to part with. How long did you pump before you had to do gluten free?

  2. I know whichever way you choose to continue to pray for Simeon and his surgery will be the exact perfect way!! If you start a novena let us know, and I'm sure many will join in. He is indeed a handsome baby, perfectly made in every way!!

  3. Yes, please post the novena and I'll join in as well!

  4. Shelly--That frozen milk there is only January!! It didn't take long to get that much. I just throw it now, he always gets fresh and as it gets old, I throw it. (I cringe every time:)

    Gardenia--Thank you so much, thanks again for the reminder to do a novena too!!

    Nicole, thank you!!

  5. (((hugs))) Jamie. Hoping my thoughts and prayers can help you with your nerves.

    Your precious little boy will be in good hands (I hope). Those Drs. are amazing.

    He is the luckiest baby in the world to have a mama who loves him so much.

    let me tell you...not sure I could do all the pumping and throw that milk away.

    Thaw that out and use it in some cake mix. Tom and the kids will never know...hee hee!

  6. Our family will be at the Shrine of Our Lady of Good Help on May 4th and 5th. Will keep Simeon in our prayers. Would you like us to take something of his with us?

  7. Jamie, before you throw the milk out, ask your pediatrician if your local Children's hospital or maternity unit has a milk bank. Another baby might be able to use it. When I was nursing one of my boys I donated milk for a research project at Ohio State.

  8. Hi, my name is Sarah, and I run a cross your blog. Please don;t throw your milk. I was unable to breastfeed my youngest, do to cancer and was blessed to find, Human Milk 4 Human Babies - Minnesota of facebook. I was able to feed her for 18 months with other mothers milk. https://www.facebook.com/#!/HM4HBMN

    Praying for your son and family.

  9. I've been thinking about you and praying as you prepare for Simeon's surgery. I think the nerves would be very tough as mama.
    Please let us share in the novena prayers with you once you decide which one--I know we'd all love to join you in prayer!

  10. Will remember Little Simeon in our prayers. What a little sweetheart. Hope all goes well.

  11. Continued prayers for Simeon and you. A would love to pray along with the novena you choose if you were to post it.

    I, too, have heard of places that accept donated breast milk. Your doctor would probably know of a place you could take it to.

  12. Donate your milk! There's lots of moms around who could use it, or you could check with your hospital!

    I can't imagine the nerves you must have as the big day approaches. My stomach gets twisted into knots just imagining what you are going through!

    I can only put it into the terms I use when I think about Roslyn's feet- the doctors aren't giving her more beautiful feet- she was beautiful the way God made her- but they are giving her more functional feet, and that is a great gift. Same is true for Simeon's palate and lip. I miss Roslyn's crooked little feet so much I cry sometimes, and you'll probably feel the same when Simeon's palate is modified.

    Hang in there mama. The sooner the date comes, the sooner it will be over.

  13. okay, my idea was not a good one
    but you knew I was just kidding

    Great idea to donate.

  14. Jamie...sending prayers your way as Simeon's big day approaches!! Would love to pray along with you in which ever novena you choose. Dontating the milk is a great idea that everyone is sharing. I'm not sure how long you can deep freeze it, but maybe you can just save it for Simeon until he is older and less fussy. Sure hoping his fussiness improves.;) Also, this may be a no brainer, but don't forget your pump when you go to the hospital.:)

  15. I know you are nervous and rightly so but I have such a good feeling about the care Simeon will be getting. All of us will be praying and I have no doubt that God will direct the doctors as they perform that miracle surgery.

  16. Oh, thank you for all your prayers!!

    I think we need prayers that he sleeps through the night the night before because he won't be able to eat for 6 hours before surgery!! He'll be screaming the whole time!! He has slept some long nights, like last night from 12 to 6:15am...that would be great only 45 minutes of crying!! haha!

    I called our hospital and they had me leave a message for the lactation specialist...so hopefully she will know what I can do with all that milk!

    Thank you for all your ideas!!!

    Oh Kim!--I want to go!! I've heard such good things about that shrine, you will be there the day of his surgery!! I don't know what to give you--any suggestions?

    Christine--hmmmmm....your birthday is Thursday...might have to make some CAKE---yes...milk cake--hahahhahahahahahahah(evil laugh)

    Mary Beth--I can deep freeze for a year, but this is in the fridge freezer so only 6 mos....my new gluten free stuff will go in the deep freeze and then I'll quit pumping at a year and give him this new stuff...I think, see? I've got it all planned out...haha!

    Monica--EXACTLY--You totally understand, it's like that, I kiss his little side lip on the top left all the time, it fits perfectly in my lips--I cry sometimes at night loving it's yummyness so much....knowing it will be gone soon.

  17. HOw about a blanket? Not his favorite,he'll need that of course! Or we can pick something up there. I'm always amazed how God works things out when it comes to baby surgeries. We've never had anything real serious just a hernia surgery for Matthew when he was about 4 mos. and Andrew had a CAT scan when he was real young (he was sedated so couldn't eat beforehand.) Neither were good sleepers and both slept right up to the time we left for the hospital! I noticed on Our Lady of Good Help website you can email your prayer intentions, too.

  18. Wow, where did the time go? I can't believe the surgery is so soon now. I cannot imagine how you must be feeling. You hold it together so well! The Lord has you and your family in his graces! God Bless!!!

  19. Praying for your sweet baby and you all while you all go through this. Sending you Aloha!

  20. Hey Jamie. I follow you all the time still but don't have time to always post. If you can't save the milk because of the gluten, you could donate it. I wasn't able to fully nurse Sonja the first 5 months, but supplemented with donor milk. It was a huge blessing, honestly. This woman and I connected on a deep level because of it. Just a thought. Your little man is always in our prayers. I don't pump but I know how HARD those first few months/year of nursing is. Sonja is 26 months now (still nursing) and I'm so glad we both worked through the hard times. God Bless you my friend.

  21. Jamie, praying for that sweet sweet boy! I think donating milk requires testing (of the mom or the milk...I'm not sure) but you could always give it to your toddler to drink. It can only be good for her!! I have had to give up dairy, soy, gassy veggies/beans and spicy foods while nursing my babes. Your sacrifices are exponential!

  22. I read your posts a lot too, but not always have time to comment. Will be praying for you, baby, and your family. I know all will be well, and by the way your baby is Very Blessed by your love, and the love from his family! Ann

  23. I will be praying hard that all goes well with Simeon's surgery! In the meantime, I just can not get over his eyes...they are beautifully mesmerizing. God is amazing!!!

  24. Prayers, Jamie,
    I know how hard it must be...darn nerves! I will be praying. May God bless Simeon with a smooth and successful surgery, and please let him have a good sleep the night before.

  25. I know how you're feeling.. (((HUG)))... the week(s) leading up to surgery were the hardest for me. You've been in my thoughts and prayers. If you do a novena please share it here so I can join with you! I will be holding Simeon, you, your hubby & family in my prayers.

  26. Our Possible had an open heart surgery. She was 6 at the time. This was one of the hardest things I have ever been through. I felt as if I were in purgatory while she was under. I couldn't feel, prayer was dry and my husband and I just sat waiting.

    I look back at that time and I can see God holding us the entire time. So please know that no matter how hard it is for you and how much pain your baby might be in, God is holding you. Let yourself feel that and everything else will fall in to place.

    Simeon will never be more beautiful just a little different. I was talking about your family the other night and my 17 year old son wanted to see your blog. While we prayed for weight gain and healthy surgery, Bear kept saying, "Look at how much love they have for each other. That baby is one of the luckiest kids on earth, his siblings don't care what he looks like they really do love him."

    I have seen that in the pictures right from his birth. I want you to know that your family helped my family talk about unconditional love. (Someone asked what we would do if the twins had something wrong with them.) I could answer them with we wouldn't even notice but one child worried that she wouldn't know how to love a baby that wasn't perfect. After looking at your fmaily on the blog with kids about the same age she realized that just like your kiddos love Simeon for who God made him to be, we would also love our twins however God has made them. Thank you. You all are in our prayers.


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