Thursday, August 2, 2012

LIttle Sim

Thank you for all your prayers.

We are still at the hospital, Simeon is asleep and I slipped into the lounge to quick update you.

He's doing better.  They did not put a feeding tube in, but we are supplementing with formula in his milk.  (formula adds 4 calories per ounce, which is a lot to a tiny baby)

He ended up with a urinary tract infection, which is caused from his kidney hydronaphrosis (sp?).  He's gone through many, many tests and his ultrasound revealed an obstruction in his ureter again, either this obstruction caused the infection or the infection caused the obstruction.  This infection caused him to lose his appetite, causing him to lose over 2 pounds, and causing his electrolites to get all messed up, his little body just couldn't keep up.  His sodium level was very, very low, so low that if it were any lower, he'd be having seizures.  We are so blessed.  So blessed to have brought him in when we did.    His iron level is very low also, which is why he's such a whitey...but he is a red head too, so he won't exactly be soaking up the sun!  They started him on iron today.  He started an antibiotic yesterday afternoon and by evening he was eating much better and even laughed and giggled for me!!  (it's been over a week since we've seen that smile!)  The low iron is causing him to be very sleepy, almost weak.

He has an appointment with the urologist September 5th and they added a couple long tests to check out the blockage, to see if the antibiotic clears up the obstruction.  (praying for that)

We also need him to gain some weight!!  (praying for that)  I'm thinking they will keep us here til Saturday or Sunday.  (maybe I'm hoping it's not longer)  They want to see him at least back on the growth chart.

Thank you for all your prayers, they are keeping us up.  Please also pray for our family, as it is so very hard on my husband Tom and especially the little ones.

Mary Hannah has been staying at the hospital with me, and has been such a sweet blessing to me.  Jedi wants to stay tomorrow night.  (Rosie stayed with us in May, so it's the other kids turns)

Thank you again, I have to get back.  God bless you all.  Hopefully next week things will be back to normal (except the newly added ton of doctor appointments) and we can talk about much more exciting things, like The Pioneer Woman!!

**I forgot to add that on infants and elderly, urinary infections are hard to detect, as they do not often times have any symptoms, like the burning feeling while urinating or even a fever, Simeon had no signs, til he quit eating.  

23 comments:

  1. Oh Jaime dear! I know some of your pain. My little Shortcake was about 14 months old when she got a UTI and because of the lack of symptoms we didn't catch it for a week and she ended up in the hospital on IV antibiotics. It's so scary but he's in a great place where I am sure they are taking great care of him. We will keep you all in our prayers!

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  2. God bless his sweet little heart! So glad you all caught it in time. I am praying for him and for all of you. You are made of tough stuff, my friend, and you will pass through this with the Lord at your side.

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  3. Thank you so much for the update. I've put little Simeon's name on the prayer roll at my temple. So glad he smiled for you. That can make all the difference!

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  4. Thank you so much for the update, Jamie. We are keeping you, Simeon and the rest of your family in our daily prayers and rosary. You have been in my thoughts very often. Thank God he was brought to the hospital in time and that he is getting the care he needs. Sending you a ton of Love and ((HUGS))!

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  5. My prayers continue to be with you.

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  6. It sure was a blessing to go when you did Jamie and I am so happy that they seem to have a handle on how to get everything to where it should be. Prayers are continually working for your whole family during this time because you are "Family".
    Hugs,
    Odie

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  7. Thanks for updating, Jamie. What a blessing that you went to the hospital when you did! Poor Simeon. We will keep up the prayers for all of you.

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  8. Thanks for the update. I'll be praying today at my rosary group for your little guy and the rest of your family. Hang in there!

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  9. Thank You for updating us. I have been going crazy wondering how you all were doing. I was going to call the hospital. But I didn't want to intrude. I'm in town regularly.(Almost daily). I can't tell you how happy it makes me that Simeon is doing better. I have been very worried about all of you and praying. God's Peace to you and your family. I will continue to pray for you everyday.

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  10. I am still praying. Hospitals can be so hard, but there are many, many prayers coming your way. God bless.

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  11. Oh Jamie! Thanks so much for taking the time to update all of us. I've been wondering how everyone's doing. So sorry Simeon (and your family) are going through all of this, but so grateful you have each other to help carry this cross. I get all welled up when I read your posts. Our family will continue to pray and hope for better news soon. Wish you didn't have to wait till Sept for the urologist appt. See how God guided your family to take him in when you did, though? He is still caring for you all and it's beautiful to see the love his siblings have for him and you in all of this. What a school of compassion you have going on. YOur children will grow up to be beautiful people. Much love and hugs from the Northeast.

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  12. It is Friday morning and checked first thing here from our hotel. Going to West Bend Iowa today...will say some prayers for you all there. Thanks so much for the update and hope all goes well.
    love to all.

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  13. Oh no! It's so hard when little ones can't tell us what's wrong, or point to the booboo! I am so glad it was nothing more seroius than this and that he is already regaining his good humor!

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  14. Scary when they get sick like that, so thankful that you brought him in when you did, before seizures! Still praying for healing and peace...so glad to hear he is doing so much better already! Pax Christi.

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  15. You're in the right place for his physical healing and you've got many people praying for him. He couldn't be in better hands!

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  16. Little Sim and your family are in my prayers!

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  17. Thankful surgery wasn't necessary yet. Prayers for a constant weight gain, it's not easy I remember that with my heart kiddo. Prayers for the whole family during this time! <3

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  18. Oh baby!!! I'm praying for sweet Simeon

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  19. Jamie Jo, I'm praising God that the conditions have been detected and that the doctors are solving them so that Simeon can return to normal!! he's in my prayers, and you all are. God bless you!

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  20. Just did a family rosary for Simeon. Glad he is getting what he needs...wish I could give him some of my pounds :-)

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  21. Glad that you caught this in time and I will continue to pray for a quick healing and recovery. I know this has been a heck of a bumpy road . . . hang on tight - God will keep blessing you guys!

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  22. Oh boy :( Poor Simeon. The UTI's are hard to detect. Sonja was four months old when she become lethargic and spiked a fever of 104 (four months old! I was FREAKING out at the hospital). She had a full blown kidney infection, due to undetected kidney reflux on both sides. So, yeah...in babies and the eldery...I remember. Praying for you all. Hospitals are hard to stay in for extended periods. Prayers for strength and a quick recovery!

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  23. I am so sorry that I am just now reading this on August 9th. This little man is such a fighter and I love that you could rejoice in his smile. We will keep continue to keep him in our prayers. I am looking forward to new pictures on the blog of his eyes being big and bright yet again.

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